✓ The Spectrum of Hope ↠´ Download by · Gayatri Devi Reading this book made me realize that Alzheimer s Disease isn t necessarily an immediate death sentence There are degrees of symptoms The disease can progress rapidly or slowly Dr Devi s approach to her patients is centered on maintaining their sense of dignity and self worth and she concentrates on how best to achieve a satisfying way of life for them She seems like the kind of physician healer we all need If you know of someone who has been diagnosed with this spectrum of disorders or just want to advance your understanding of Alzheimer s this is the first book you should read It s amazingly comprehensive and offers lots of practicle suggestions.
WSJ Excerpt essay may be paywalled Seven years ago, Joe, a 73 year old man with a patrician bearing, came to see me at my Manhattan office with his stylish wife and their grown daughter I ve changed his name to protect his privacy A money manager in charge ofthan a billion dollars in assets, Joe could tell that his memory was fading Transactions that were once easy for him had started to cause him trouble Many people have the idea that Alzheimer s is a one way street to inexorable decline They believe that treatment is ineffective, which often discourages them from seeking a diagnosis when facing memory loss.
But the reality of the disease is very different Having worked as a neurologist for over 20 years, I see Alzheimer s not as a single disease but as a spectrum disorder with a wide range of symptoms, responses to treatment and prognoses Early diagnosis and treatment has kept many of my patients stable Joe is 80 now I recently got a call from an outraged cardiologist whom Joe had seen for a problem unrelated to his Alzheimer s What do you mean Joe has Alzheimer s he asked He is functioning perfectly There s nothing wrong with him You should redo his tests I do not believe this man has Alzheimer s Not very long ago, Joe and I had a heated discussion about the stock market and I am delighted to report that, despite my best efforts, I lost the argument Dr Devi is director of Park Avenue Neurology in New York This essay is adapted from her new book If you need a full copy of her essay, message me with your email Essential reading for anyone facing this disease, in themself or a loved one.
A Neurologist Who Specializes In Dementia And Memory Loss, Dr Gayatri Devi Rewrites The Story Of Alzheimer S By Defining It As A Spectrum Disorder, Affecting Different People Differently The Spectrum of Hope Grips The Reader, Humanizes The Science, And Offers Equal Parts Wisdom And Practical Advice With Skillful Ease But Beyond That, It Offers Real Hope I ve started reading two or three other books about Alzheimer s, but didn t get very far This book is an absolute GEM It weaves information, reflections, stories, advice and encouragement Beautifully written Thinking about writing to the author, not my usual practice Definitely on my ten best ever books list Bought it before finishing reading the library copy P.
S This book is not just about Alzheimer s It would be of benefit to ANYONE who is alive.
What a helpful book My mother was recently diagnosed with Alzheimer s She s likely had it for the last several years but so excellently covered for her disease, only those seeing her on a daily basis would realize something was off with her This book was just excellent in laying out various scenarios and at the same time helping to answer questions for those of us serving as caregivers I could see mother in many of these scenarios, and feel I have a much better understanding of what she is experiencing after reading this helpful book It is truly a book for patients and caregivers alike.
A Very Important Book So wish I had read this a year ago, I could have had some info in hand to beaggressive in getting my Dad in for evaluation treatment Easy to read, do not need any kind of medical background to understand Highly recommend for anyone concerned for themselves or others about developing dementia or have seen concerning behavioral changes There are a lot of highly functional people living with dementia Its important to address cognitive and brain reserve and maximize a strong immune system Dr Devi with 2 decades of experience, uses cases to highlight different aspects of her evaluation protocol and various treatments medication, behavioral therapies, cognitive exercise and transcranial magnetic stimulation She identifies whether someone has She also discusses that there are a few other diseases that if not ruled in or out, can lead to a misdiagnosis of dementia I was particularly struck with how she teases out whether someone is having memory issues, changes in language or life skills and how that is important to tailor individualized treatment plans She advocates staying in the home if possible, discusses caregivers hospitalizations, and living dying with dignity.
I was very interested to read this book having had both my parents die from the result of Alzheimer s, my mother from early onset, my father had Lewy body type.
The disease has intrigued me due to both going this way and wonder if it was hereditary, environmental or medical factor had something to do with it This book really did give me hope for the future of Alzheimer patients, my mother tragically spent many many years in a chair not speaking, occasionally you would see tear slipping down her cheek and her eyes would sparkle and we knew she understood, but no one had any idea how to treat the people with this distressing disease.
If only we knew, if only other knew she would have had some dignity in her last years.
Anyone with a relative or friend with Alzheimer s should read this book, anyone who fear it should also read this book, and find some hope within it Everyone should read this and understand that the people with Alzheimer s can live fruitful lives not be stuck in a chair and hidden away.
A welcome and much needed alternative to the dire picture of the one size fits all Alzheimer s that exists in the popular media, this book offers an alternative a spectrum with room for lifestyle changes medicine that offsets rate of change The message is wholly inspiring There is no question about it Especially when the author, a noted neurologist, takes the time to explain the facts, genetics doesn t turn out to explain much, even though somehow everyone assumes they do Once the reader understands that big piece of the puzzle, the spectrum of dementia makes so much sense it s amazing we haven t heard of it before The case histories are wonderful they thoughtfully expand on ideas that otherwise would remain just outside our grasp We wouldn t think of them unless someone we knew had experienced them I had one struggle I wishedwas said about dementia and apathy It was just too briefly mentioned Otherwise, this is a gem and should be widely shared Too many friends and relatives live in quiet fear of their future and need not I received my copy from the publisher through NetGalley I am deeply appreciative.
When I saw the title of this book, I was immediately drawn to it I felt the need to find what this doctor has learned, what there is that is cause for optimism in her approach to Alzheimer s and other dementias What I ve learned does give me hope and a measure of optimism Within the Alzheimer s classifications of rapid vs slowly progressive, Dr Devi has broken down the disease into further levels, and evaluates major cognitive areas and current level of function Using multiple case studies, she makes the case for various forms of intervention and how they can markedly affect the speed of progression of the disease As a former Occupational Therapist who worked in home care for many years, I wish I d had this resource for patients and families Of course, most of the people I saw were further along the spectrum by the time I met them, but there is valuable information for those families here too.
The book provides information on the diagnostic process, the various aspects of the treatment process recommended by Dr Devi along with results seen in case studies and some of patients who opted not to participate There is also a nice section on the difference between memory and intelligence, very useful for anyone who has had a patient or family member say How did I get so stupid There is a chapter on the genetics of Alzheimer s and also the use of diet, physical activity and social engagement as means of prevention Other chapters deal with such common problems as fear of bathing, depression, apathy Also when is it time to hire private help And each of these are shown through multiple case studies, each from a slightly different perspective And there is much .
One of the major public mis perceptions is that ALL of Alzheimer s IS the most severe cases In truth, there are very likely many undiagnosed people functioning well in society around you every day, working, driving, socialising without any perceptible problem Their symptoms are so sub clinical that they and their significant others don t notice them Many of Dr Devi s patients continue to work, with some adaptation, for years, some in very high level positions Of course, as the doctor emphasizes, no two people are alike and no two cases of Alzheimer s are alike I hope that, should I develop the tell tale symptoms of Alzheimer s, I am fortunate enough to find a physician as intelligent, as humane, and as caring as Dr Devi who obviously has acted with her whole and best self as much as possible on behalf of her patients and their families.
I recommend this as a resource for libraries, for individuals in health care and for those with interest in this area, be they patients or family members A copy of this book was provided by the publisher through NetGalley in return for an honest review.
Sadly I found this to be uninformative and dry.
The information is repeat of what s been published Information that is found in pamphlets handed out by doctors and nurses My expectations might have been too high or what I thought would be informative with solutions and options for help didn t evolve, sadly.
I do a lot of reading and researching for new information as my Mother has alzheimer s and had hopes for some new and enlightening solutions and answers.